Sat. Oct 10th 2020
@ The Schreiber’s
REGISTER BY Sept. 25th
Join us for a day of FAMILY FUN!
Walk for Willow is an annual fundraiser celebrating Willow Schreiber. This year we will be having a Virtual Walk and Drive By to see Willow and family and to pick up shirts! Register Today
Join us in her journey!
Willow was born with a rare neurological condition called MPPH Syndrome. She is non mobile, non verbal, completely dependent on her parents, fed through a tube in her belly, and many other complications. Willow's journey has not been easy; each year we hit new speed bumps. Along with MPPH, Willow has been diagnosed with uncontrollable epilepsy, reoccurring pneumonias, hypoglycemia, frequent stomach issues ending her in the hospital & dumping syndrome. Despite our bad days we have learned to cherish each day, enjoy every smile and believe that everyday will be a great day! She has surprised not only her parents and everyone that loves her, but her doctors are so pleased with the amazing progress she has made.
We're often asked with Willow's diagnosis what her life expectancy is. The truth is, we don't know. This event was created to celebrate Willow's life and accomplishments each year. This will be our 9th Walk for Willow and we're hoping to make it our biggest celebration yet!
We're often asked with Willow's diagnosis what her life expectancy is. The truth is, we don't know. This event was created to celebrate Willow's life and accomplishments each year. This will be our 9th Walk for Willow and we're hoping to make it our biggest celebration yet!
REGISTER BY Sept. 25th
Donate $25 or more and receive a WALK SHIRT!
HELP US MAKE A DIFFERENCE!
With all your generous donations from last year, Willows family was able to build her an incredible roll in shower and handicap bedroom. Andrea says, "People don't often realize how difficult it is to bath a child that is completely dependent on you. The safety of it alone is huge. Without these donations there would be no way we could provide her with things to make her life as easy as possible! So to say we are grateful is an understatement!" Funds raised at this event will aid the family with Willow's on-going medical expenses. The family is also hoping to make her new home as handicap assessable as possibly.
Last year's event included 250 participants. This year's goal is to have even more, even though it’s Virtual! Help us reach this goal by registering today. Thank you for your support!
Last year's event included 250 participants. This year's goal is to have even more, even though it’s Virtual! Help us reach this goal by registering today. Thank you for your support!
REGISTER HERE!
Register today as a "virtual walker". A donation of $25 or more will receive a Walk For Willow Shirt! Anything over $25 will get you a raffle ticket! One family can register together! Please include each shirt size you'd like with each $25 donation by clicking on “Write a comment”. Thank you for your support! Questions> email: willowvae@gmail.com
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Make a difference while also promoting your company's brand! Click below for information about company sponsorship and email us today to enroll your company as a sponsor. |